UPDATE – June 2026
Lilou continues to fight for her life!
Over the past few months, Lilou has been through more than any child should ever have to endure. She is only 13 years old. While other children dream about holidays, spending time with friends, and their future, Lilou was forced to face the devastating reality that she is suffering from a life-threatening form of cancer. Despite everything, she has never given up.
The cancer spread, and metastases developed. Countless examinations, biopsies, hospital stays, chemotherapy treatments and radiotherapy sessions followed. Lilou has not only been fighting for her life, but also for her eyesight. Among other areas, she had to undergo radiotherapy to her eye sockets, chest and lymph nodes.
Then, at last, there was a glimmer of hope: the metastases began to shrink. The tumour lesions became smaller, and Lilou was selected to receive an innovative immunotherapy alongside a personalised cancer vaccine.
We thought life might finally become a little easier – but fate had other plans.
This summer, Lilou’s eyesight deteriorated once again. She also began suffering from severe pain in her left eye. An MRI scan of the orbit revealed new masses – a tumour measuring approximately 3 cm, as well as another lesion of around 1 cm within the eye socket. An urgent biopsy had to be performed so that her doctors could determine the most appropriate course of treatment.
Everyday is a battle
Despite the pain, fear and exhaustion, Lilou has not lost her determination to live. She wants to live. She still has so many dreams.
Our daily life now revolves almost entirely around travelling between our home and various hospitals. Over the past few months, the costs of treatment, travel, medication, accommodation and everyday living expenses have increased dramatically.
On top of this, the car we relied on to take Lilou to her treatments has broken down. We urgently need a reliable means of transport, as we regularly have to travel long distances between Berlin and specialist treatment centres. During these journeys, Lilou often needs to stop to rest or lie down when the pain or the side effects of her treatment become overwhelming.
That is why we are once again asking for your support
Every donation, no matter how small, will help us provide Lilou with the very best possible treatment and cope with the many additional challenges that come with living through this illness.
UPDATE – 05.08.2025
Our Fight Continues!
We once again find ourselves facing a tremendous challenge. A recurrence has occurred, and our brave Lilou, who has remarkably endured chemotherapy and the subsequent treatments following her initial diagnosis, is now battling in round two.
In addition to the standard therapy, we are keeping all possibilities on the table. At the moment, our focus is on Entinostat, an unapproved drug on which we are pinning our hopes. As we must cover the costs of this medication ourselves, donations will now primarily be allocated towards this. Our overarching goal remains to secure a promising therapy abroad and to finance it. This includes providing Lilou with supportive aids that make her daily life easier, as well as nutritional supplements, treatments with alternative practitioners, massage therapies, and other therapies that are not covered by German health insurance.
We kindly ask for your continued support in our fight against cancer. Together, we can bring hope and light to Lilou during this dark time.
Furthermore, we still welcome any assistance; if anyone has knowledge to share, knows specialists, or has connections with individuals who have successfully found alternative therapies or treatments abroad for the same diagnosis, please do not hesitate to reach out to us at info@youcansaveher.com.
We thank you from the bottom of our hearts ❤️
Cheers to your kindness and compassion!
Absolutely splendid news, chaps and chapettes!
Here you can discover the latest aids, treatments, and delightful surprises that Lilou has received thanks to your generous donations. From cutting-edge medical devices to innovative therapies and charming little treats, your contributions have truly made a world of difference in Lilou’s journey towards better health and well-being. Stay tuned to uncover the heartwarming impact of your support on Lilou’s life.
Cheers to your kindness and compassion!